On Sep 20, 2010, at 9:51 AM, falcuazjr@gmail.com wrote:
Kat,
I guess I sometimes feel so good that I forget my meds. I take them within a day though. This time, I forgot BOTH Enbrel and MTX. Will take tonight. I'm hoping Doctor Lorenzo says I can/should try taking Enbrel once a week na lang. Below are symptoms I'll share with and qstns I'll ask. Don't be overly concerned: am just trying to be comprehensive now that consultations will be less regular. Please add your own observations/questions.
1. The first month or so of Enbrel was fantastic. Then there was what I think I've read described as a ``tapering off.'' I sometimes feel very faint versions of the pain I used to feel on the sides of my feet. This sensation shifts from area to area and foot to foot. Sometimes, there's none at all.
2. The worst manifestation of this came as and after I tried to surf in late August. It was much better after a day or two. I don't think it even visibly affect my walking. I don't remember if I mentioned to you, or if you noticed.
3. Should I avoid such exertions -- including running -- and limit myself to swimming? If so, should I not even do the treadmill test in a physical exam? How do I know if I can do a trek? :)
4. For the past two weeks or so, I've felt a kind of tightness in the lower half of my back, particularly when I bend forward and back. This started within a week of my surfing attempt and caused Michelle and me to avoid/eliminate some exercises. This became much less noticeable/bothersome last week and especially after a lot of swimming this past weekend.
5. Is there a way to measure range of motion? I sometimes wonder/worry that limitations may be starting because I don't know how much I was able to do before. (For example, I've wondered about the extent to which I can turn my head, though Michelle says it seems normal.)
6. Pilates and other exercises: what are good for me and what should I avoid. Sleeping position.
Please add if you have any observations/questions! Appointment is 11 a.m. Don't know yet if Michelle can join us.
Thanks!
On Mon, Sep 20, 2010 at 10:27 AM, klimcaoco2@yahoo.com wrote:
Let's ask about lymphoma and the new drug.
Sent from my iPad
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